Rare Disorders

Depending how you define it, there are between 5000 to 8000 different known rare diagnoses and WHO estimates 400 million people worldwide to be affected. This means that although each single rare condition is rare, rare diagnoses are common in the population and among every dentist’s patients. The dentist may be the professional first in line to pick up the signs and symptoms from the orofacial complex and this session will encourage the attending delegate to pay attention to patterns of orofacial symptoms potentially part of a rare diagnosis.

The pre-congress seminar also aims to share information about rare diagnoses of special interest and importance to dental professionals, enabling proper actions and care management. Rare disease databases will be introduced. Different aspects on rare disorders in dentistry will also include dental treatment planning, shared decision making, information strategies, networking and inter-professional collaboration.


Dr. Hilde Nordgarden

Specialist in Paediatric Dentistry, Phd

National Centre for Oral Health in Rare Diagnoses
TAKO-centre, Lovisenberg Diaconal Hospital

Dr. Johanna Norderyd

Specialist in Paediatric Dentistry

National Oral Disability Centre for Rare Disorders
Institute for Postgraduate Dental Education in Jönköping

Dr. Pernilla Hilmberg

Specialist in Oral Prosthodontics

National Oral Disability Centre for Rare Disorders
Institute for Postgraduate Dental Education in Jönköping

Lena Romeling Gustafsson

Clinic Coordinator

Göteborg, Sweden

Hans Gjørup

Specialist in orthodontics, PhD

The Centre for Oral Health in Rare Diseases
Aarhus University Hospital, Denmark

Pamela Åsten

TAKO-centre, Lovisenberg Diakonale Sykehus

Medical Problems in Dentistry

The numbers of medically complex patients presenting to dental teams is increasing and can cause fear and uncertainty for attending clinicians as advice changes and new guidance is introduced. This pre-congress seminar will present an update in areas such as cardiac disease, management of common and significant inherited conditions, management of dental problems for children and young adults with haematological malignancies and medication related risks to oral health.

This session will also provide the delegate with the valuable opportunity to submit their own questions related to any aspects of hospital and medically complex dentistry and present them to the eminent international panel for discussion.

9:00Welcome and introductions to the expert panel
9:10New insights into the prophylaxis of endocarditis
Dr Jacobo Limeres-Posse
University of Santiago de Compostela, Spain
9:40Haemoglobinopathies, thalassaemias and enzymopathies
Dr Mohammed Jaber
College of Medicine, Dubai, United Arab Emirates
10:10Managing risk in patients with congenital bleeding disorders
Dr. Alison Dougall
Dublin Dental Hospital, Trinity College, Dublin, Ireland
11:00Haematological Malignancies in Children and Young Adults
Dr. Zikra Alkhayal
King Faisal Specialist Hospital, Rhiadh, Saudi Arabia
11:30Medication-related osteonecrosis of the jaw – an update
Prof. Pedro Diz-Dios
University of Santiago de Compostela, Spain
12:00Ask the experts – interactive session
Open questions from the floor regarding any aspect of dentistry for medically complex patients for discussion with the panel

Special Olympics Health

Special Olympics International IADH Pre Congress

Thursday, August 30, 2018 | 8:30am-5:00pm

Globally Changing the Game for People with Intellectual Disabilities

For 50 years the Special Olympics global movement has been dedicated to providing sports training and competition, health programming, and related programs to the global population of persons with intellectual disabilities. After more than 20 years of global health programming Special Olympics Healthy Athletes, has conducted nearly two million health screenings in 135 countries and in the process has become the largest global public health program dedicated to serving people with intellectual disabilities.

Special Olympics clinical data speaks one dominant truth: Quality health care services are not reaching this population and quality, specialized health care training for health professionals has not been addressed. These gaps become quite apparent in the data collected via the Special Olympics global Special Smiles program. Research has also shown that disparities in oral health largely impact the overall health and quality of life of an individual.

The Special Smiles program and its clinical data have created adapted screening protocols for providing quality screenings and services to people with intellectual disabilities and developed innovative strategies for informing policy change and creating access to care. Changes in accreditation standards and curricula are taking root in an increasing number of countries. Model partnerships with universities and national and international public health organizations, for instance, have begun to emerge that are improving access to care while simultaneously enhancing training of providers.

This daylong session will be provided to a limited number of delegates with the opportunity to learn more about how partnering with Special Olympics Health can help create sustainable strategies to improve the health of some of the most vulnerable population through panel discussions, presentations and didactic training by oral health professionals and public health thought leaders.


7:30 am Breakfast
Registration and Networking
8:30am Welcome Remarks

Panel 1: Examining the Global Oral Health Crisis and How Special Olympics Health is addressing the needs through Unlocking Health Systems

WHO Strategies for oral disease prevention and health promotion

Dr. Yuka Makino, Oral Health Division Technical Officer, WHO Headquarters, Geneva

Unlocking Health Systems for People with Intellectual Disabilities Javier Vasquez, JD,LLM Senior Director Health Systems, Special Olympics International, Washington, DC

10:15am-10:45am Panel discussions and questions

Panel 2: Exploring Innovative Solutions for Special Care Dentistry through Special Olympics Research & Data, Dental Education and Policy change

Impact of Special Smiles for changes in oral health care for people with disability in Germany

Dr. med. Imke Kaschke MPH, Leiterin Gesundheit und Medizin, Head of Health and Medicine, Special Olympics Deutschland

Culture Shock: How Special Olympics Special Smiles Influenced a Dental School Dr. Reena Kumar, Principal and Dean, Divya Jyoti College of Dental Sciences, Uttar Pradesh, India

11:45am-12:15pm Panel discussion and questions
12:30pm Lunch
1:30pm-3:00pm Special Smiles Didactic Training Part I
3:00pm-3:15pm Coffee Break
3:15-5:00pm Special Smiles Didactic Training Part II


Hands on Course in Statistics - As Applied to Special Care Dentistry

Dr. Sharat Chandra Pani

Assistant Director
Research Center
Riyadh Colleges of Dentistry and Pharmacy

Course synopsis

This hands-on course is designed for researchers who wish to develop their skills and knowledge in statistics as applied to Special Care Dentistry. Through a blend of lectures and hands on practice by the end of the course participants will be able to identify populations with special health care needs and apply appropriate measures of central tendency and dispersion, be able to identify skew and plan statistical tests accordingly. They will lean how to calculate power and determine sample size in special care populations and apply correct tests of significance of difference. Finally participants will learn about regression and correlation and all tests will be explained using data from SCD research, with the emphasis to be laid on the interpretation of data.

Detailed programme

TimeLectureLearning Objectives
Describing the special health care needs population
Lecture 30 min
Hands on (using SPSS ver.25) – 60 min
Identify the unique descriptive characteristics of Special Needs populations
Apply the measures of central tendency and dispersion to normally and abnormally distributed populations
Identify skew and plan the statistical tests accordingly
Differentiate when to use parametric and when to use non parametric tests
Calculate sample power and determine sample size in special care populations
Break (30min)
Associations and differences in Special Care populations
Lecture – 45 min
Hands on – 75 min
Revise the spectrum of parametric and non-parametric tests
Tests of Significance of Difference – Parametric
Tests of Significance of Difference Non-Parametric
Correlations and regressions
(All tests will be explained using data from SCD research, emphasis to be laid on the interpretation of data)